Histiocytosis Association of America
The Histiocytosis Association of America (HAA) is an international partnership of parents, patients,
physicians and friends bound together by their mutual interest in histiocytic disorders.
In an effort to compensate for the limited information on the disorders and the
small number of individuals and families dealing with them, the Association provides
a variety of educational and emotional support programs to its members, as well
as other interested parties. In addition, the Association promotes scientific and
medical investigation into histiocytic disorders through its research program with
the aim of establishing better treatments, a cure, and prevention of the diseases.
Research Program
The objectives of the Research Program are to fund worthy
scientific research projects, educate physicians and scientists, encourage and support
symposia into histiocytic disorders, directly participate in research projects,
and encourage publication of scientific information.
Member Services
These programs include educational brochures, networking directories, regional education
meetings, newsletters, toll-free phone number, annual awareness campaign, online
virtual community website, physician-linking network, and volunteer coalition.
Fundraising Program
The goal of the Histiocytosis Association's Fundraising Program is to provide resources
for the Association's research program, member support programs, administrative
and fundraising costs through a cooperative effort of the Board of Trustees and
Association staff with assistance from patients, families, physicians and friends
of the Association.
HAA Membership
There is no cost to become a member of the Histiocytosis Association of America.
Membership is automatic at the time of initial contact and/or original request for
information. Members are entered into the Association's database and coded according
to his/her relationship with a histiocytosis patient. This coding system insures
that members receive all pertinent and appropriate materials.
